• This Little Parking Decal

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    ARCHIVED POST FROM A YEAR OR MORE AGO THAT I NEVER PUBLISHED… Every single time I pull into a large hospital parking garage, or packed lot, I am so thankful for my parking decal. If there’s another spot nearby that I know my […]

  • Abi’s 1st Week of Kindergarten… And So It Begins

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    Abi is in kindergarten for her second week of full days. Oh my heart. The weeks leading up to the end of summer were sleepless and exhausting and I think a lot of it had to do with my worries […]

  • Man Gives Away Free Software to Help Those W/ Communication Challenges via Eye-Gaze Device

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    This is amazing. I have a few friends who use similar eye-gazing devices to assist with communication and I love that this man not only developed the software (inspired by his aunt) but is also giving it away for free! How incredible. Unlike many […]

  • Our Story

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    In 2011, my husband and I began the process of adopting our precious daughter, Abiella. Prior to meeting her, we knew her medical report read “Cerebral Palsy and Microcephaly”, but the wide spectrum of symptoms and abilities that correlate with these diagnoses […]

  • Nurse from Heaven…

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    For parents of those with special needs- the questions can soar and the answers can by murky. This is what happens with 20%, this is what happens with 80%, this is what we THINK we can expect, this is what […]

Latest in Mary Susan's Journal

home with abi

Our Story

In 2011, my husband and I began the process of adopting our precious daughter, Abiella. Prior to meeting her, we knew her medical report read “Cerebral Palsy and Microcephaly”, but the wide spectrum of symptoms and abilities that correlate with these diagnoses […]

Latest in Art & Projects

sunflowers

Abi’s Sunflowers

Last Easter Abi planted sunflower seeds on the side of our barn with my mother (her Nonny). For three months we went out everyday and taught Abi how to water her seeds. We all loved seeing how tall the flowers were growing. Eventually […]

arts and crafts with mark

Painting Pumpkins

Every fall we paint pumpkins. This year Abi chose lots of pearly pink and loads of gold glitter. These pumpkins were dressed to impress. I let her choose the colors by using the eye gaze method (holding two colors in front of her […]

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parking decal

This Little Parking Decal

ARCHIVED POST FROM A YEAR OR MORE AGO THAT I NEVER PUBLISHED… Every single time I pull into a large hospital parking garage, or packed lot, I am so thankful for my parking decal. If there’s another spot nearby that I know my […]

Latest in Education

Latest in Medical

abi and mama hospital - Copy

Nurse from Heaven…

For parents of those with special needs- the questions can soar and the answers can by murky. This is what happens with 20%, this is what happens with 80%, this is what we THINK we can expect, this is what […]

g-tube10 favorite things

My Top 10 Favorite Things About the Feeding G-Tube

Abi has had a g-tube for 3 years now. While we are making great progress in feeding therapy, the tube is still how we get most of our calories, meds, and hydration. My friends in similar situations always laugh that […]

Latest in Therapies

Abi feeding tube and feeding therapy

Feeding Tubes and Where We are with Abi’s Eating

To say my daughter is a fighter is an understatement. And yet, every “battle” she has faced she has done so with enormous courage and more often than not, genuine excitement. Her warrior spirit is in her smile, her enthusiasm, […]

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Considering

Who You Are

“To be nobody but yourself in a world which is doing its best day and night to make you like everybody else means to fight the hardest battle which any human being can fight and never stop fighting.” ― E.E. […]

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Latest in Law

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Map of Educational Resources for Kids with Special Needs

Wrightslaw, a website dedicated to special education law and advocacy, has put together a “Yellow Pages for Kids” for families of children with special needs. The resources are categorized by state and can be accessed HERE via a map of […]