Latest in Mary Susan's Journal

minor to major

When Minor Feels Major…

The past few weeks we’ve dealt with a few minor health issues with Abi.  When you’re the parent of a child with unique health needs however, “minor” can very quickly feel “major.” For example, Abi has been dealing with pollen allergies. This is […]

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Yuck

Wowzer. This weekend was a doozy. Not sure if it was the red pollen alert or a common cold gone off the deep end, but I haven’t felt that bad in years. After getting Abi to school on Friday, I […]

Latest in Art & Projects

sunflowers

Abi’s Sunflowers

Last Easter Abi planted sunflower seeds on the side of our barn with my mother (her Nonny). For three months we went out everyday and taught Abi how to water her seeds. We all loved seeing how tall the flowers were growing. Eventually […]

arts and crafts with mark

Painting Pumpkins

Every fall we paint pumpkins. This year Abi chose lots of pearly pink and loads of gold glitter. These pumpkins were dressed to impress. I let her choose the colors by using the eye gaze method (holding two colors in front of her […]

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parking decal

This Little Parking Decal

ARCHIVED POST FROM A YEAR OR MORE AGO THAT I NEVER PUBLISHED… Every single time I pull into a large hospital parking garage, or packed lot, I am so thankful for my parking decal. If there’s another spot nearby that I know my […]

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minor to major

When Minor Feels Major…

The past few weeks we’ve dealt with a few minor health issues with Abi.  When you’re the parent of a child with unique health needs however, “minor” can very quickly feel “major.” For example, Abi has been dealing with pollen allergies. This is […]

abi and mama hospital - Copy

Nurse from Heaven…

For parents of those with special needs- the questions can soar and the answers can by murky. This is what happens with 20%, this is what happens with 80%, this is what we THINK we can expect, this is what […]

Latest in Therapies

Abi feeding tube and feeding therapy

Feeding Tubes and Where We are with Abi’s Eating

To say my daughter is a fighter is an understatement. And yet, every “battle” she has faced she has done so with enormous courage and more often than not, genuine excitement. Her warrior spirit is in her smile, her enthusiasm, […]

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Considering

Who You Are

“To be nobody but yourself in a world which is doing its best day and night to make you like everybody else means to fight the hardest battle which any human being can fight and never stop fighting.” ― E.E. […]

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Latest in Law

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Map of Educational Resources for Kids with Special Needs

Wrightslaw, a website dedicated to special education law and advocacy, has put together a “Yellow Pages for Kids” for families of children with special needs. The resources are categorized by state and can be accessed HERE via a map of […]